Hope is the thing with feathers that perches in the soul
And sings the tune without the words, and never stops at all
And sweetest is the gale is heard; and sore must be the storm
That could abash the little bird
That kept so many warm...
~Emily Dickinson

Wednesday, October 6, 2010

thank you

My heart is very heavy and sad today.

I have come to realize that there will never be enough help out there for these kiddos with Autism.
Even if a family is lucky enough to find the best therapy/therapist out there, it will only last until the money is gone, or until the therapist must move on to better themselves.
I understand that the need for help outweighs the resources available, and it is beyond frustrating.
I also understand that most of these people that offer their help, whether paid or not, are nothing short of angels. The sad, political side of it all is that they just don't make enough money for all that they do.
Just like teachers, these therapists are underpaid and I would suspect in some cases under appreciated.

It makes me so sad that most of us have to rely on faith to keep going.
There is no solid "plan" in place that would allow us to put our intellectual faith in any sort of system out there.
No matter what intentions an organization sets up for themselves, in the end it all comes down to money....duh...but I still hate it.

With a disorder like Autism families/people are forced to live off of faith....
Most of us have little to no money, and the money we do have is all put towards these kids and their recovery....or the hopes of a recovery.
I am not complaining about the money our family has invested in Kannon.
It has been worth every penny.

I just wish that there was a way I could find peace with my faith in this life journey, and know that it will all be o.k.
Not perfection, just o.k.

I just want to know that there are people out there other than myself who love these kids as much as their families do. Maybe not completely possible, but you know what I mean.
And, when we are lucky enough to have these people in our lives, how we can keep them there...
without restricting them, or forcing them.
I also wish that the therapists who help these kids everyday would know just how much they are appreciated and hope that they don't loose sight of the bigger picture when politics get involved in their job.

The best gift that can be given to a family affected by Autism is time, love and acceptance.
I know how it feels when someone genuinely tells me what a good job I am doing as a mother.
Especially as a mother to a child who has Autism.
I have become a better mother because of the help and guidance of these therapists and the therapy they practice.

I hope someday the system can catch up to this concept.
These kids are more than charts, numbers, or $
Their mere presence in a room can change your life, put a smile on our face, melt your heart.

I am thankful to those few in our life who have affected us so deeply...the showing of human compassion and willingness to grow and open your minds/hearts has not gone unnoticed.
What you do is revolutionary and beautiful.

Unfortunately these kids have no choice in the matter when it comes to having Autism, but fortunately for them there are people out there that do choose to deal with it...

peace :)

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